Reading and Resources
Resources from Professional Organizations
American Academy of Allergy Asthma & Immunology (AAAAI) https://www.aaaai.org/
American Gastroenterological Association (AGA) https://gastro.org/
American College of Gastroenterology (ACG) https://gi.org/
North American Society for Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN) https://naspghan.org/professional-resources/medical-professional-resources/eosinophilic-esophagitis/
Practice Support Tools
American Academy of Allergy, Asthma & Immunology (AAAAI) Ask the Expert (for members) https://www.aaaai.org/Allergist-Resources/Ask-the-Expert
American Academy of Allergy, Asthma & Immunology (AAAAI) Telemedicine https://www.aaaai.org/Allergist-Resources/Telemedicine
Rx Health AGA Digital Transformation Network https://rx.health/GI/
GI OnDEMAND https://giondemand.com/
International Network for Diet and Nutrition in Allergy https://www.indana-allergynetwork.org/
SupportedPatientTM (AGA-endorsed) https://supportedpatient.com/Home.html
Eosinophilic Esophagitis Activity Index. Safroneeva E, Straumann A, Coslovsky M, et al. Symptoms have modest accuracy in detecting endoscopic and histologic remission in adults with eosinophilic esophagitis. Gastroenterol. 2016;150:581-590.e4. doi:10.1053/j.gastro.2015.11.004
Dysphagia Symptom Questionnaire. Warners MJ, Hindryckx P, Levesque BG, et al. Systematic review: Disease activity indices in eosinophilic esophagitis. Am J Gastroenterol. 2017;112:1657-1669. doi:10.1038/ajg.2017.363
Straumann Dysphagia Index. Straumann A, Conus S, Degen L, et al. Long-term budesonide maintenance treatment is partially effective for patients with eosinophilic esophagitis. Clin Gastroenterol Hepatol. 2011;9:400-409.e1. doi:10.1016/j.cgh.2011.01.017
Pediatric Eosinophilic Esophagitis Symptom Score. Martin LJ, Franciosi JP, Collins MH, et al. Pediatric Eosinophilic Esophagitis Symptom Scores (PEESS v2.0) identify histologic and molecular correlates of the key clinical features of disease. J Allergy Clin Immunol. 2015;135:1519-1528.e8. doi:10.1016/j.jaci.2015.03.004
Patient Education
American Gastroenterological Association (AGA) Gastrointestinal (GI) Patient Center. Eosinophilic esophagitis (EoE). https://patient.gastro.org/eosinophilic-esophagitis/
American Partnership for Eosinophilic Disorders (APFED) https://apfed.org/
American Academy of Allergy Asthma & Immunology (AAAAI). Eosinophilic Esophagitis. https://www.aaaai.org/Conditions-Treatments/related-conditions/eosinophilic-esophagitis
American Gastroenterological Association (AGA) Gastrointestinal (GI) Patient Center. Six-food Elimination Diet (SFED). https://patient.gastro.org/six-food-elimination-diet-sfed/
Campaign Urging Research for Eosinophilic Disease (CURED). All Hands In. https://curedfoundation.org/
GI On DEMAND. https://giondemand.com/landing-for-patients/
EOSNETWORK. https://www.eosnetwork.org/
GI Kids. Eosinophilic Esophagitis. https://gikids.org/eosinophilic-esophagitis/
National Institutes of Health (NIH). US National Library of Medicine. ClinicalTrials.gov. https://www.clinicaltrials.gov