Reading and Resources
Resources from Professional Organizations
American Academy of Allergy Asthma & Immunology (AAAAI) https://www.aaaai.org/
American Gastroenterological Association (AGA) https://gastro.org/
American College of Gastroenterology (ACG) https://gi.org/
North American Society for Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN) https://naspghan.org/professional-resources/medical-professional-resources/eosinophilic-esophagitis/
Practice Support Tools
Web resources
American Academy of Allergy, Asthma & Immunology (AAAAI) Ask the Expert (for members) https://www.aaaai.org/Allergist-Resources/Ask-the-Expert
American Academy of Allergy, Asthma & Immunology (AAAAI) Telemedicine https://www.aaaai.org/Allergist-Resources/Telemedicine
GI OnDEMAND https://education.giondemand.com/
International Network for Diet and Nutrition in Allergy https://www.indana-allergynetwork.org/
Rx Health AGA Digital Transformation Network https://rx.health/GI/
SupportedPatientTM (AGA-endorsed) https://supportedpatient.com/Home.html
Articles
Clinical guidance for the use of dupilumab in eosinophilic esophagitis: A yardstick. Aceves SS, Dellon ES, Greenhawt M et al. Ann Allergy Asthma Immunol. 2023;130:371-378.
Dysphagia Symptom Questionnaire. Warners MJ, Hindryckx P, Levesque BG, et al. Systematic review: Disease activity indices in eosinophilic esophagitis. Am J Gastroenterol. 2017;112:1657-1669.
Eosinophilic Esophagitis Activity Index. Safroneeva E, Straumann A, Coslovsky M, et al. Symptoms have modest accuracy in detecting endoscopic and histologic remission in adults with eosinophilic esophagitis. Gastroenterol. 2016;150:581-590.e4.
Pediatric Eosinophilic Esophagitis Symptom Score. Martin LJ, Franciosi JP, Collins MH, et al. Pediatric Eosinophilic Esophagitis Symptom Scores (PEESS v2.0) identify histologic and molecular correlates of the key clinical features of disease. J Allergy Clin Immunol. 2015;135:1519-1528.e8.
Straumann Dysphagia Index. Straumann A, Conus S, Degen L, et al. Long-term budesonide maintenance treatment is partially effective for patients with eosinophilic esophagitis. Clin Gastroenterol Hepatol. 2011;9:400-409.e1.
Patient Education
American Gastroenterological Association (AGA) Gastrointestinal (GI) Patient Center. Eosinophilic esophagitis (EoE). https://patient.gastro.org/eosinophilic-esophagitis/
American Partnership for Eosinophilic Disorders (APFED) https://apfed.org/
American Academy of Allergy Asthma & Immunology (AAAAI). Eosinophilic Esophagitis. https://www.aaaai.org/Conditions-Treatments/related-conditions/eosinophilic-esophagitis
American Gastroenterological Association (AGA) Gastrointestinal (GI) Patient Center. Six-food Elimination Diet (SFED). https://patient.gastro.org/six-food-elimination-diet-sfed/
Campaign Urging Research for Eosinophilic Disease (CURED). All Hands In. https://curedfoundation.org/
GI On DEMAND. https://giondemand.com/landing-for-patients/
EOSNETWORK. https://www.eosnetwork.org/
GI Kids. Eosinophilic Esophagitis. https://gikids.org/eosinophilic-esophagitis/
National Institutes of Health (NIH). US National Library of Medicine. ClinicalTrials.gov. https://www.clinicaltrials.gov
Pediatric-Focused
Approaches and Challenges to Management of Pediatric and Adult Patients With Eosinophilic Esophagitis. Hirano I, Furuta GT. Gastroenterology. 2020 Mar;158(4):840-851.
Esophageal subepithelial fibrosis in children with eosinophilic esophagitis. Chehade M, Sampson HA, Morotti RA, Magid MS. J Pediatr Gastroenterol Nutr. 2007 Sep;45(3):319-328.
Feeding difficulties in children with non-IgE-mediated food allergic gastrointestinal disorders. Chehade M, Meyer R, Beauregard A. Ann Allergy Asthma Immunol. 2019 Jun;122(6):603-609.